We are so thankful to welcome Naomi into our family!! We want to ask for your prayers for her...
Naomi’s doctor has told
us that due to her multiple birthmarks, called multiple congenital nevi,
(especially on the head) she could have NCM (Neurocutaneous Melanocytosis) , a
complication of multiple congenital nevi. The doctor said that in 80 % of NCM
cases the child will live a normal life and in 20% of the cases the child can
have side effects, like seizures. We would appreciate your prayers as we will
be heading to Boston, MA so Naomi can see a Pediatric Neurologist. She has
already had an MRI but due to lack of sedation the test was very hard to read
correctly, so the MRI will probably be repeated in Boston by the Children’s
Hospital. Also, Naomi did not gain weight for 10 days after our first doctor’s
appointment, but we are happy to report that now she is doing a lot better in
that area and starting to gain weight!
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