Waiting for our last dinner out before heading home to PNG!
Dr. Kate told us that Naomi is developing wonderfully at 6 months
old! So thankful to hear that! And all we can do now is monitor Naomi by
watching for two things… measuring her head, to make sure the extra melanin
spots, aren’t blocking the fluid flowing through the brain… and multiple
headaches or sudden movements to indicate seizures. She said that the next two
years will be the mostly likely time in Naomi’s life that something might
develop because of her NCM condition. But 80% of children do not have any side
effects from NCM. Please pray with us… pray that Naomi is in the 80% bracket.
So we will need to return to Brisbane or Boston (which ever
we are closest to) once a year so that Naomi can have a checkup MRI. The
doctors will monitor the extra melanin spots in the brain to make sure nothing
has changed. Naomi will also see an eye doctor each year to make sure her eyes
are looking good. And she will need to see a dermatologist each year. The
dermatologist that we saw here told us that there is no need to have all of
Naomi’s birthmarks removed because whether or not they are there, the areas
will still have to be monitored for skin cancer. Although there might be one or
two birthmarks that she may want removed for cosmetic reasons in the future.
The doctors here have been so very helpful. They have given
us their email addresses so we can email with questions if anything comes up
while we are in PNG over the next year. The dermatologist said to send photos
of Naomi’s birthmarks if any of them change… and she can take a look. In the
meantime Naomi should wear spf50 sunscreen and a big hat and sun resistant
swimwear. 😀
We are so thankful for Dr. Kate who told us to just enjoy
watching Naomi grow and let us know that her and the other doctors will do the
work of monitoring her health as we return each year. We are also thankful for
the Ronald McDonald House and the staff here who have been wonderful as we have
worked through the last 10 days. God has provided for us in many ways here…
family times at parks, yummy food, an old friend and new friends to visit and beautiful
fall weather as we enjoyed the city of Brisbane on the river. And of course
Jonathan is quite happy with his new boomerang… which he can throw quite far…
and hasn’t quite figured out how to get it to come back to him. 😀
YUM! French Fries!
Our family enjoys plane rides!
But Jonathan was excited to get back to Wewak!
And Naomi was happy about it too. :)
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